Vivência do Cuidador Familiar de Pessoas Idosas em Cuidados Paliativos: Tomada de Decisão

Melissa Frecero Consiglio; Cenir Gonçalves Tier; Aline Ost dos Santos; Marcia Adriana Poll; Silvana Bastos Cogo; Leticia Aquino Dickow; Marina Peres Alves; Marianna Jorge da Silva

doi:10.36489/nursing.2025v30i331p12314-12328

Authors

Melissa Frecero Consiglio Hospital at Steinenberg https://orcid.org/0000-0001-5460-3841
Cenir Gonçalves Tier Enfermeira. Doutora em Enfermagem. Docente de enfermagem na Universidade Federal do Pampa. https://orcid.org/0000-0003-1539-7816
Aline Ost dos Santos Enfermeira. Doutoranda em Ciências. Universidade Federal do Rio Grande https://orcid.org/0000-0002-1849-9933
Marcia Adriana Poll Enfermeira. Doutora em Enfermagem. Docente de enfermagem na Universidade Federal do Pampa https://orcid.org/0000-0002-9451-9991
Silvana Bastos Cogo Enfermeira. Doutora em Enfermagem; Docente de enfermagem na Universidade Federal de Santa Maria https://orcid.org/0000-0002-1686-8459
Leticia Aquino Dickow Graduanda de Enfermagem na Universidade Federal do Pampa https://orcid.org/0009-0004-3479-5734
Marina Peres Alves Graduanda de Enfermagem na Universidade Federal do Pampa https://orcid.org/0009-0002-0628-0675
Marianna Jorge da Silva Graduanda de Enfermagem na Universidade Federal do Pampa https://orcid.org/0009-0005-6750-3782

DOI:

https://doi.org/10.36489/nursing.2025v30i331p12314-12328

Keywords:

Aged, Palliative care, Family, Decision Making

Abstract

Objective: to understand the experience of family caregivers in the shared decision-making process in palliative care for older adults in primary health care. Method: Qualitative study conducted between October 2022 and February 2023 with ten family caregivers of older adults in palliative care in primary health care. The data were analyzed according to Bardin. Results: The following categories were constructed: Information needed by family caregivers for decision-making; coping skills of family caregivers for decision-making. Conclusion: Coping resources and skills were associated with support from information about care throughout the course of the disease to generate security and comfort in decision-making.

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Author Biographies

Melissa Frecero Consiglio, Hospital at Steinenberg

Graduated in Nursing from the Federal University of Pampa (2024). Member of the Study and Research Group on Human Aging at the Border (GEPESH-FRON). Member of the Center for Studies on Family and Chronicity (NEFAC). Conducts research in the area of palliative care, advance directives, and primary health care.

Cenir Gonçalves Tier, Enfermeira. Doutora em Enfermagem. Docente de enfermagem na Universidade Federal do Pampa.

She holds a bachelor's degree in Nursing from the Integrated Regional University (URI) (2004), a master's degree in Nursing from the Graduate Nursing Program at the Federal University of Rio Grande (FURG) (2006), and a doctorate from the Graduate Nursing Program at the Federal University of Rio Grande (FURG) (2014). She served as Coordinator of Monitoring and Certification for the Dean of Extension at the Federal University of Pampa from 2012 to 2014. She served as coordinator of the Nursing Course from 2015 to 2017. She is currently an associate professor in the Nursing program at the Federal University of Pampa (UNIPAMPA). She has experience in the field of nursing, with an emphasis on elderly health. Leader of the Study and Research Group on Human Aging at the Border (GEPESH-FRON). Coordinator of the Specialization Course in Health Management at UAB-UNIPAMPA. Scholarship Tutor for PET Saúde/ISD Pampa Conectado, E-Cidadania Group

Aline Ost dos Santos, Enfermeira. Doutoranda em Ciências. Universidade Federal do Rio Grande

I am a doctoral student in Science at the Federal University of Rio Grande (FURG) and hold a Master's degree in Nursing from the Graduate Program at the Federal University of Santa Maria (2023). I am the Deputy Leader of the Study and Research Group on Human Aging at the Frontier (GEPESH-FRON), linked to the Federal University of Pampa. I have been conducting research focused on the development of technologies for various nursing scenarios, with an emphasis on creating innovative tools to support professionals in health care and education with the aim of helping to popularize science. Among the areas of greatest interest, I highlight technologies applied to Primary Health Care, digital health, mental health, human aging, advance directives, and care practices in the process of living and dying.

Marcia Adriana Poll, Enfermeira. Doutora em Enfermagem. Docente de enfermagem na Universidade Federal do Pampa

She holds a bachelor's degree in Nursing and Obstetrics from the Regional University of the Northwest of the State of Rio Grande do Sul (1996), a bachelor's degree in Nursing and Obstetrics from the Regional University of the Northwest of the State of Rio Grande do Sul (1996), a master's degree in Nursing from the Federal University of Rio Grande (2007), and a doctorate in Health Sciences from the Federal University of Health Sciences of Porto Alegre (2022). She has experience in the field of Nursing, with an emphasis on Nursing in critical patient care, working mainly in the following areas: Cerebrovascular care/stroke and trauma/external causes.

Silvana Bastos Cogo, Enfermeira. Doutora em Enfermagem; Docente de enfermagem na Universidade Federal de Santa Maria

She holds a bachelor's degree in Nursing from the Franciscan University (UFN) (2002), a master's degree in Nursing from the Federal University of Santa Maria (2008), and a doctorate in Nursing from the Federal University of Rio Grande (2016). She is currently an Associate Professor in the Nursing Department at the Federal University of Santa Maria and in the Graduate Nursing Program at UFSM. She is a tutor in the Nursing Tutorial Education Program (PET). She is the leader of the Nursing and Health Study and Research Group (GEPES). Coordinator of the Multiprofessional Academic League of Palliative Care at UFSM (LAMCP). She has experience in the field of nursing, working mainly in the following areas: nursing, the process of death and dying, bioethics, advance directives, palliative care, and care-educational technologies.

Leticia Aquino Dickow, Graduanda de Enfermagem na Universidade Federal do Pampa

Undergraduate student in Nursing at the Federal University of Pampa

Marina Peres Alves, Graduanda de Enfermagem na Universidade Federal do Pampa

Undergraduate student in Nursing at the Federal University of Pampa

Marianna Jorge da Silva, Graduanda de Enfermagem na Universidade Federal do Pampa

Undergraduate student in Nursing at the Federal University of Pampa

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